Biobanks

Biobanks
  • Author : Herbert Gottweis
  • Publsiher : Routledge
  • Release : 28 April 2008
  • ISBN : 1134090269
  • Pages : 236 pages
  • Rating : 4/5 from 21 ratings
GET THIS BOOKBiobanks

Summary:
In recent years, a number of large population-based biobanks – genetic databases that combine genetic information derived from blood samples with personal data about environment, medical history, lifestyle or genealogy – have been set up in order to study the interface between disease, and genetic and environmental factors. Unsurprisingly, these studies have sparked a good deal of controversy and the ethical and social implications have been widely debated. Biobanks: Governance in Comparative Perspective is the first book to explore the political and governance implications of biobanks in Europe, the United States, Asia, and Australia. This book explores: the interrelated conditions needed for a biobank to be created and to exist the rise of the new bio-economy the redefinition of citizenship accompanying national biobank developments This groundbreaking book makes clear that biobanks are a phenomenon that cannot be disconnected from considerations of power, politics, and the reshaping of current practices in governance. It will be a valuable read for scholars and students of genetics, bioethics, risk, public health and the sociology of health and illness.


Biobanks

Biobanks
  • Author : Herbert Gottweis,Alan Petersen
  • Publisher : Routledge
  • Release : 28 April 2008
GET THIS BOOKBiobanks

In recent years, a number of large population-based biobanks – genetic databases that combine genetic information derived from blood samples with personal data about environment, medical history, lifestyle or genealogy – have been set up in order to study the interface between disease, and genetic and environmental factors. Unsurprisingly, these studies have sparked a good deal of controversy and the ethical and social implications have been widely debated. Biobanks: Governance in Comparative Perspective is the first book to explore the political and

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Biobanks

Biobanks
  • Author : Antonella De Robbio
  • Publisher : Elsevier
  • Release : 26 November 2012
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Biobanks represent an invaluable research tool and, as a result of their intrinsic and extrinsic nature, may be looked upon as archives or repositories largely made up of libraries, or collections of content where the content is the biological material derived from different individuals or species, representing valuable tangible assets. Biobanks analyses aspects of the commons and common intellectual property relating to the concepts of private property, not only concerning data but biological materials as well, and the advantages and

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Reciprocity in Population Biobanks

Reciprocity in Population Biobanks
  • Author : Ma’n H. Zawati
  • Publisher : Academic Press
  • Release : 22 September 2021
GET THIS BOOKReciprocity in Population Biobanks

Reciprocity in Population Biobanks: Relational Autonomy and the Duty to Inform in the Genomic Era begins by discussing how current judicial interpretation keeps standard of disclosure at the core of genomic research. The book then outlines multiple limitations individualistic autonomy faces in the context of gene and population biobanks, including an analysis of the complexities of benefit considerations in the research setting. Second, the book explores how individualistic autonomy fails to acknowledge the multilateral relationships implicated in genomic research, including

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GDPR and Biobanking

GDPR and Biobanking
  • Author : Jane Reichel,Santa Slokenberga,Olga Tzortzatou,Springer Nature
  • Publisher : Springer Nature
  • Release : 25 June 2022
GET THIS BOOKGDPR and Biobanking

Part I Setting the scene -- Introduction: Individual rights, the public interest and biobank research 4000 (8) -- Genetic data and privacy protection -- Part II GDPR and European responses -- Biobank governance and the impact of the GDPR on the regulation of biobank research -- Controller' and processor's responsibilities in biobank research under GDPR -- Individual rights in biobank research under GDPR -- Safeguards and derogations relating to processing for archiving purposes in the scientific purposes: Article 89 analysis for biobank research

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Ethical Issues in Governing Biobanks

Ethical Issues in Governing Biobanks
  • Author : Alexander M. Capron,Nikola Biller-Andorno,Professor Alexandre Mauron,Professor Bernice Elger
  • Publisher : Ashgate Publishing, Ltd.
  • Release : 28 February 2013
GET THIS BOOKEthical Issues in Governing Biobanks

Population genomics research drawing on genetic databases has expanded rapidly, with some of this information being combined in 'biobanks'. Managing this information in an appropriate way is a highly complex ethical issue in the health policy arena. This book combines theoretical and empirical research to analyze the areas of conflict and consensus in the regulatory and ethical frameworks that have been developed to govern biobanks. Ethicists from the Department of Ethics, Trade, Human Rights and Health Law (ETH) of the

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Biobanking

Biobanking
  • Author : William H. Yong
  • Publisher : Humana Press
  • Release : 14 December 2018
GET THIS BOOKBiobanking

This volume not only discusses various common biobanking topics, it also delves into less-discussed subjects such as what is needed to start a biobank, training of new biobanking personnel, and ethnic representation in biospecimen research. Other chapters in this book span practical topics including: disaster prevention and recovery; information technology; flora and fauna preservation including zoological fluid specimen photography; surgical and autopsy biobanking; biobanking of bodily fluids; biosafety; cutting frozen sections; immunohistochemistry; nucleic acid extraction; and biospecimen shipping. Written in

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Biobanks

Biobanks
  • Author : Herbert Gottweis,Alan Petersen
  • Publisher : Routledge
  • Release : 28 April 2008
GET THIS BOOKBiobanks

In recent years, a number of large population-based biobanks – genetic databases that combine genetic information derived from blood samples with personal data about environment, medical history, lifestyle or genealogy – have been set up in order to study the interface between disease, and genetic and environmental factors. Unsurprisingly, these studies have sparked a good deal of controversy and the ethical and social implications have been widely debated. Biobanks: Governance in Comparative Perspective is the first book to explore the political and

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Governing Biobanks

Governing Biobanks
  • Author : Jane Kaye,Susan Gibbons,Catherine Heeney,Andrew Smart
  • Publisher : Bloomsbury Publishing
  • Release : 03 February 2012
GET THIS BOOKGoverning Biobanks

Biobanks are proliferating rapidly worldwide because they are powerful tools and organisational structures for undertaking medical research. By linking samples to data on the health of individuals, it is anticipated that biobanks will be used to explore the relationship between genes, environment and lifestyle for many diseases, as well as the potential of individually-tailored drug treatments based on genetic predisposition. However, they also raise considerable challenges for existing legal frameworks and research governance structures. This book critically examines the current

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Comparative Issues in the Governance of Research Biobanks

Comparative Issues in the Governance of Research Biobanks
  • Author : Giovanni Pascuzzi,Umberto Izzo,Matteo Macilotti
  • Publisher : Springer Science & Business Media
  • Release : 30 January 2013
GET THIS BOOKComparative Issues in the Governance of Research Biobanks

In the last few years, the boom in biobanking has prompted a lively debate on a host of interrelated legal issues, such as the Gordian knot of the ownership of biological materials, as well as privacy concerns. The latter are due to the difficulty of accepting that biological samples must be completely anonymous without making it practically impossible to exploit their information potential. The issues also include the delicate role and the changing content of the donor’s “informed consent”

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Governing Intellectual Property Rights Within Publicly Funded Biobanks

Governing Intellectual Property Rights Within Publicly Funded Biobanks
  • Author : Rajam Neethu
  • Publisher : Kluwer Law International B.V.
  • Release : 21 June 2019
GET THIS BOOKGoverning Intellectual Property Rights Within Publicly Funded Biobanks

Governing Intellectual Property Rights Within Publicly Funded Biobanks R. Neethu The boom in biobanks and health databases as research infrastructures have evoked various legal and ethical debates. Since then numerous new developments have emerged such as digitalization, big-data research and artificial intelligence which has important implications for biobank-based research and collaborations. This new paradigm offers new legal challenges for commercial involvement particularly within a publicly funded setting. In this innovative book, the author shows that securing maximum social benefit out

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Biobanks and Tissue Research

Biobanks and Tissue Research
  • Author : Christian Lenk,Judit Sándor,Bert Gordijn
  • Publisher : Springer Science & Business Media
  • Release : 30 July 2011
GET THIS BOOKBiobanks and Tissue Research

The research field of biobanks and tissue research is highly promising. Many projects around the globe are involved in the collection of human tissue and health data for research purposes. These initiatives are driven by the perspective of decisive breakthroughs in the knowledge of the genetic pathways involved in widespread diseases. However, there are considerable ethical and legal challenges to be considered as well. These challenges encompass the use of body material for research purposes, the misuse of genetic and

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Human Genetic Biobanks in Asia

Human Genetic Biobanks in Asia
  • Author : Margaret Sleeboom-Faulkner
  • Publisher : Routledge
  • Release : 19 November 2008
GET THIS BOOKHuman Genetic Biobanks in Asia

This volume investigates human genetic biobanking and its regulation in various Asian countries and areas, including Japan, Mainland China, Taiwan, Hong Kong, India and Indonesia.. It sheds light on how cultural, socio-political and economic factors influence the set-up of bioethical regulation for human genetic biobanks and how bioethical sensitivities surrounding biobanks are handled. Apart from placing discourses of trust in an international perspective, the comparative materials presented in this volume also put into perspective the concepts of genetic theft and

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Ethics, Law and Governance of Biobanking

Ethics, Law and Governance of Biobanking
  • Author : Deborah Mascalzoni
  • Publisher : Springer
  • Release : 22 January 2015
GET THIS BOOKEthics, Law and Governance of Biobanking

Biobank research and genomic information are changing the way we look at health and medicine. Genomics challenges our values and has always been controversial and difficult to regulate. In the future lies the promise of tailored medical treatments and pharmacogenomics but the borders between medical research and clinical practice are becoming blurred. We see sequencing platforms for research that can have diagnostic value for patients. Clinical applications and research have been kept separate, but the blurring lines challenges existing regulations

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